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Frequently Asked Questions

...about patient advocacy and working with patient advocates or navigators.

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FAQs: Patient Advocacy and Working with Patients' Advocates and Navigators
Why can't I count on doctors and nurses to take care of me or my loved one?
  The sad state of healthcare in the United States is that we may no longer be able to count on healthcare professionals such as doctors, nurse practitioners, physician assistants and nurses to provide all the care we need.

It's not their fault.  They are being pulled in too many directions by health insurance companies, pharmaceutical companies, a plethora of medical research they can't keep up with, and a population of baby boomers who are aging and getting sicker than ever before in history.

According to the US government, between 44,000 and 98,000 Americans die each year from preventable medical errors and misdiagnoses.  Millions more suffer from these mistakes.

Further, because the system is so skewed in the direction of reimbursements for procedures and tests, instead of talking to patients, too often patients are being overcharged, or charged for services never performed.

Having an advocate on your side may be the best way to avoid being one of those statistics.

   
Hospitals already have patient advocates on their staffs.  Why can't that person help me?
  The hospital's patient advocate may be able to help you.  However, you have to remember, that person gets his or her paycheck from the hospital -- not you.  When they go to bat for you, you may not get complete satisfaction because they are working for the hospital, not you.
   
Does a patient advocate have a medical degree or health care training?
  Among those who deal with the health aspects of advocacy, many do.  Many are retired from actual practice and help patients because they most enjoy that aspect of their work.  Others are trained more in the administrative, insurance or legal aspects of work, so their training may not be in health care, but will be in an area that can help you. 

Very few formal patient advocate programs exist, so advocates tend to come from a variety of backgrounds.
   
My parents live in another city and I can't be there to monitor their appointments or coordinate their care.  Can a patient advocate do this for me?  How does the doctor know a patient advocate has permission to do that?
  Out of town care is a perfect scenario for a patient advocate.  Early in the process, your parent (and you) may sign a health care proxy which the advocate will keep with him or her in case there are any questions about privacy and whether the advocate has permission to know about your parent's care.
   
My father lives in a nursing home, but I'm not sure he's getting the care he needs all the time.  Can a patient advocate keep an eye on his situation?
  Many patient advocates work with assisted living, nursing homes and elder care facilities.  Once you identify an advocate you'd like to interview, this is a good question to ask him or her.
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These Frequently Asked Questions are updated regularly.  If you have a question you'd like to see posted, please contact us.

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Learn more about patient advocacy, and keep up with some of our star advocates in
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Empower Yourself at
Every Patient's Advocate
Learn about patient advocacy at the Patient Empowerment site at About.com

 

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